The changing of the clocks, impact on a poor sleeper with Parkinson’s

UK clocks went back an hour last Sunday, back to GMT. All over the country people were enjoying an extra hour in bed, snuggled under duvets and sleeping soundly. Not me however, I was awake at 4.30am which is too early for the day to begin but all that Mr Parkinson’s was going to allow me. A little massage, putting on alternatively Birkenstocks and trainers and a bit of work out with the spiky ball sorted out the dystonia in my foot. What now? A back dated podcast of Desert Island Discs from 2011 kept me entertained for a while followed by answering any emails and looking at any baby photos from the lovely daughter Down Under. We currently have a wonderful paper boy who delivers the newspaper by 6.45am so I can catch up on the day’s news before taking tea to the amiable husband. It’s a bit like permanent jet lag! I have tried all the “good bedtime” routine without much success. I once read an article by a Parkinson’s sufferer that the last thing he thought of before he went to sleep and the first thing in the morning was his illness. Thankfully it may be exasperating but that’s not what I feel!

The arrival of Autumn has seen the return of the Dance for Parkinson’s classes in London. We are looking at the Nutcracker this term, such wonderful music and the anticipation of a visit to the Coliseum in December. The local “Good Vibrations” choir has also resumed with new songs to learn for a gig next month and a Christmas performance in a local church.

October has been a glorious month with lots of sunny, warm days. The Autumn leaves have been wonderful colours and Sussex is blessed with beautiful woods and gardens to visit.

National Trust – Sheffield Park. October 2018.

We spent a weekend in the lovely town of Rye, staying overnight in the haunted Mermaid Inn, very atmospheric. To get the best view the area we climbed to the top of the Bell Tower in St Mary’s Church. It was a steep climb up and an even steeper one coming down. It was worth it but I did think was I being rather foolish with no hand rails to grab!

It is not long until Handsome Henry will be here for Christmas. Last time he would stay where you put him but now, well he can crawl at an amazing speed and will likely be walking when we next see him, how exciting!

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