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Not just a tremor

For many people the very word “Parkinson’s” suggests a tremor and progress of the illness can be judged by this. However, 30% of sufferers do not have a tremor and it can often be other, less visible symptoms that cause more issues. For me tiredness is one symptom that can make life difficult. I tend to wake very early in the morning and subsequently can feel exhausted later on in the day. The amiable husband has had to stop me falling into my plate a few times! I try to do my most energetic activities in the mornings and not feel guilty if I have a 20 minute nap in the afternoon.

I am trying to be more aware of timing my dopamine tablets and working out how to get the best results from them. For example if I am playing badminton or walking the dopamine may not last as long as pottering about at home and I end up with a rather awkward gait prior to taking the next pills. It’s all trial and error really and one day may be different to the next. I feel it is important to try and find solutions without rushing into higher levels of medication which may well bring a whole set of new problems.

After 5 weeks away we arrived back in the UK just in time to watch the royal wedding, good to watch the nuptials of Harry and Meghan on such a beautiful day! We spent 4 weeks in Melbourne with the lovely daughter and handsome Henry before traveling to Singapore to help babysit while she attended a conference. He loved splashing about in the warm water of the swimming pool. Early one morning, it was very hot, we walked in the truly magnificent botanical gardens including the orchid section.

Orchids in Singapore Botanical Gardens.

Back home jet lag is at last beginning to fade. The amiable husband joined me for a trip to Covent Garden to watch Swan Lake, a magnificent new production. Although he would have preferred to watch Brighton playing football in the Premiership I think he enjoyed himself!

Australia House London.

While we were in London we walked past Australia House, I wondered when I will need my next visa!

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8 thoughts on “Not just a tremor

  1. How well you seem to be coping Elspeth, you so thoughtfully manage everything you do. I’m sure Amiable Husband is a great help and support. Hope to see you soon. Barb and Spike

  2. Lovely photos Elspeth , especially the botanical gardens . We have spent a lovely day there.So glad u enjoyed your trip to see Henry , is he crawling ? Hope can meet up soon .

  3. Glad you had another successful trip to Australia and this time to Singapore. It is lovely for you all to spend such quality time together. Juggling the dopamine must be difficult, and I quite appreciate the problems when you are exercising. John has the same problems with adjusting insulin. Look forward to seeing you soon and seeing all the latest photos of Henry.
    Love
    Frances x

  4. As always, Elspeth, you put such a positive slant on managing Parkinson’s and deal with all the less pleasant side effects so positively. So pleased you both had a super trip to see L and little H – not long now until you will all be together again. The photos are great but especially the visit to the beautiful Botanical gardens. What a perfect setting for this lovely photo. We have touched down in Singapore but never made a stop over and perhaps we will build it into our next visit. We are looking forward to seeing our lovely family very soon and will enjoy seeing you and the ‘Amiable husband’ in August.

    With love

    Elizabeth and Ken X

  5. You are doing so well and managing things brilliantly – 20 minutes catnap – you are entitled to it. I do the same and would prefer to do it with the orchids. Yes, brought back wonderful memories of a very enjoyable 3 days in Singapore with a Gin Sling in Raffles!! Oh, those were the days. Keep taking the pills Elspeth you look wonderful on them.xx

  6. Lovely photos Elspeth and glad all is well. It’s amazing how many people think that the only symptom of Parkinson’s is a tremor!! Hope to see you in Tonbridge, later this month. xxx

  7. Great photos Elspeth, particularly of Botanical House. I hope you manage to sort out the dopamine.
    Look forward to catching up and seeing photos of Henry.
    Xx

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