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New statistics for Parkinson’s

Recently published statistics show that the number of people living with Parkinson’s in the UK in 2018 is estimated to be 145,000, that is 1 in every 350 adults and quite a jump from the previously estimate of 127,000.

The aimiable husband has given me a special pill container which has an alarm system for the times I should be taking Madopar, the Dopamine substitute that I take three times a day. I am hoping that taking the medication on time will improve the problems I have with my left leg and foot. I am also using my spiky ball to help, rolling it under my foot. It was quite embarrassing to have to keep stopping and massaging my left foot while pushing Henry, the grandson, in his Pram.

Foot exercise.

Sleeping is a continual problem with waking at 5.30am. I seem to then need a cat nap in the afternoons! Luckily the husband is a sound sleeper and doesn’t hear my nocturnal wandering to make tea, answer emails, listen to Radio 4’s “tweet of the day” and then put headphones on to listen to an episode of Desert Island Discs. The paper boy usually arrives just before 7am so I can catch up on all the news.

I have seen a new consultant but my 7 minute appointment didn’t offer a lot of advice or inspiration!

English National Ballet’s Classes for Parkinson’s sufferers has resumed and it was lovely to catch up with old friends after my 6 months in Australia. This week we went to the Coliseum to watch “La Sylphide” and “Le Jeune Homme et la mort”, very different ballets but both excellent. Back in Oz there was a short film about the class I belong to in Melbourne on local TV. National TV is now showing interest and will be filming the class soon. This week I am back in London to watch Matthew Bourne’s production of “Cinderella”; I want to make the most of every opportunity while I feel very well!

On the news yesterday it was announced that Neil Diamond has been diagnosed with Parkinson’s and cancelled the rest of his world tour.

Neil Diamond

I hope he will use his fame to help promote understanding among the public and be an inspiration to us all.


2 thoughts on “New statistics for Parkinson’s

  1. Do you have a good Parkinson’s nurse Elspeth? We find ours more helpful than the doctor! Much as we like and get on with our GP and neurologist. Much love Gill x

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