A change of scene

Sitting here watching the rain lashing down I can’t wait to go out to Melbourne in ten days time. Lovely daughter is going to walk with me every morning by sea and sand before going into work. Hopefully our rain will have stopped and the Aussie temperatures will have dropped and the danger of fires receded. We have lots planned including a trip to Noosa, north of Brisbane, and visiting Moama to spend time with dear friends. We stay on the Mornington Peninsula one weekend where there are great vineyards including a favourite, Ten Minutes by Tractor – a glass of wine and warm weather works wonders for a tremor!
I am looking forward to reading in the warm sunshine, obviously with factor 30 sunscreen! Did you know that people with Parkinson’s have a four fold higher incidence of melanoma. I think part of the charm of Australia is that there are lots of things which are similar to England and some that are very different.

Not really much has changed much in the Parkinson’s since a year ago. Everything is slightly worse but still manageable, and life is just a little harder. If I could sort my left arm out for walking that would be great. I am disappointed that having waited a year to start medication I haven’t found anything that really works for me, now on Clonazepam as one suggestion following my recent visit to the consultant, but not looking very promising. It is a very individual but rather frustrating illness. I continue to see the physio and have a clinical massage every few weeks and do as much pilates as I can fit into life. That all helps but maybe I should accept the shoulder issues will not go away and just thank my lucky stars that most of me is ok; I can run up the stairs pretty well and generally look a picture of health!

We return home at the beginning of April but have lots planned for later in the year including a visit to Provence and the Lac de St Croix, one of our favourite places, and a River Cruise on the Danube. More actively; daughter wants me to walk the length of Hadrian’s Wall when she is next home and there is a trip with my walking group to a sporting hotel in Devon … should be fit…..!

Sunshine ahead!

Happy New Year!
We enjoyed Christmas with the lovely daughter, very traditional after an Aussie Christmas last year when we had a walk along the beach in the sunshine. Boxing Day saw us join my son and his wife at Kempton Park. I won £40 by mistake, exciting yes, but I had a very small bet, no compulsion there! I had a wonderful present of three days in Paris with the lovely daughter. We packed a lot in including watching the Bolshoi ballet at the Opera House for 10 Euros; an amazing experience.

With Desert Orchid at Kempton Park

With Desert Orchid at Kempton Park

I gave my husband a very special mug for Christmas. Taking two cups of tea upstairs in the morning was beginning to be tricky so I got him a much taller mug which I only fill halfway, no more drips now!
...the mugs!

…the mugs!

I have been taking Trihexyphenidyl for a month now and sadly this has not helped the spasms and tremor. Champagne and canapés can be challenging at drinks parties! On advise from the Parkinson nurse I have gradually trebled the dose, swimming better but not really anything else. Side effects have been manageable except this week I have become very aware that my short term memory is poor in certain situations, think this is called “word fishing”. I see the consultant in a week so will chat it through with him as long as I can remember what to say! Only 4 weeks till we are off to Australia so will have to work out medicines to take and with an 11 hour time difference when to take them.
My next Blog will be from Australia as we will be there for over a month.