It is now 4 months since I heard those memorable words -“you have a dystonic presentation of Parkinson’s”.
I was thinking about what changes there have been, mostly creeping up so slowly that it is hardly noticeable for a while but nevertheless still there, some strange ones too!
The most annoying one is the aching neck and the rigidity across my shoulders which affects my left hand too. I have looked on the internet for neck exercises, not much choice there so I am adding them into my daily routine, any top tips gratefully received. Cold weather doesn’t help so last night’s sudden heavy snowfall after a few warm and sunny days wasn’t welcome, but it looked so pretty.
A rather wacky assortment of quirky new things includes something funny going on with my eyelids and two crampy toes on one foot. As a lady who likes to shop I have to be careful when trying jeans on that I don’t overbalance. Separating eggs is a bit hit and miss, must make sure that I always have a few spare ones!
Overall though I still feel pretty good and can carry on as normal, so lucky to have a supportive lot of folk around me.
We were told by the Parkinson’s Nurse that I have to notify the driving licence folk (DVLA) about the condition, hopefully it’s just a formality. We were staggered at the number of medical conditions that are notifiable – well over 100. We completed and sent off the forms and they write to the Nurse and Consultant. After a month I have had a letter to say that they were expecting a reply from the Consultant in the next 6 weeks, what a long time!
As part of the “getting on with life” plan we have booked to go to New York in the summer, travelling both ways on the QM2 and then 5 days in the Big Apple, yippee, sounds fantastic.
I have also booked a week around St Ives in September with my walking group exploring an area much loved by my Mum, should be fine, I think.
Best foot forward then….